"It's caused by a single letter change in his DNA," Hannah shared. "That then causes this catastrophic, and fatal disease."
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In the fall of 2023, Austin and his older brother, Ean, were contacted by Sing Me a Story Foundation to write and illustrate a story about anything they want.
Together they wrote "At the Park" which describes a magical day that includes a rainbow squirrel.
The foundation then worked to turn that story into a song, connecting Composer Thane Wimberly and the choir at George Ranch High School.
"The story really gave me a lot of color to play with in my music and I just used that," Wimberly said.
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The longhorn choir performed the story turned song at their Spring Concert in front of the brothers and their family.
"I know it will be a memory that sticks with them and with me for a lifetime," Hannah said.
There is no cure for L-CMD and statistically, life expectancy is less than 18 years. Hannah started the L-CMD Research Foundation to fund researchers and scientists working to find a cure.